I may have MS....

[pagal]

Hi Guys,

I have had some testing done and apparently I have what APPEARS to be a mylonic leasion on my spine. I also have alot of other symtoms so I was wondering if you all can answer some questions....

I thought I saw a few ladies post about this disease???

BTW, how do you BOLD your post title? I can never do that!!!!

[NewWorldOrder]

Hi Pagal. My neighbor has MS. I was actually her care taker for about 8 months until I couldn't do it anymore. The disease affects each person a little differently. Some progress really fast, but others may take years to progress to the point of needing a wheelchair. Treatment for MS is usually through different kinds of medications, mostly steroids, and sometimes radiation therapy. There is no cure for MS, just treatment for the symptoms. Here's the link to the National MS Society.

http://www.nationalmssociety.org/site/PageServer?pagename=hom_gen_homepage

[Walker]

My SIL has MS. She was diagnosed at 33 yo. She was an athlete previous to the diagnosis and still remains very active. She skis, rides her bike and does pilates. She doesn't run marathons anymore because of the numbness in her feet, but can still do most everything else. She traded in her treadmill for a bike because she can lock her feet in the pedals. She is still a better skier than I am, even with the MS. She is a little more cautious, but she remains a very good athlete all around.

She is on multiple drug therapies. She is seeing one of the top MS docs in the country. She was diagnosed almost 3 years ago and is relatively stable.

Everyone diagnosed is going to have a different progression of symptoms. Some cases of MS are progressive and others relapse/remit. I am not sure if they can predict which type you have on diagnosis.

As far as my SIL goes, she is upbeat and determined to remain active as long as possible. She has a fabulous support system and great doctors. My advice for you is to do the same as she has; get a good doctor, get a good support system and remain as active as possible. This possible diagnosis is not a death sentence.

[Wally]

My DW has Chronic Fatigue Syndrome. She was tested for MS and found clear yet CFS has many of the same symptoms. I as well as many others(I'm sure) are praying for you. Some prefer the secret closet. Keep us updated.

:pray:pray:pray

[GreenEyedLady]

Hi Guys,

I have had some testing done and apparently I have what APPEARS to be a mylonic leasion on my spine. I also have alot of other symtoms so I was wondering if you all can answer some questions....

I thought I saw a few ladies post about this disease???

BTW, how do you BOLD your post title? I can never do that!!!!

You poor thing. My husband was diagnosed last year. He has been on Rebif ever since and is doing really good. You should be able to find an MS thread in the prayer section. Buzz also has MS. My husband ended up getting a service connect disability from the service because he was diagnosed with in 7 years of his discharge. Apparently MS is being tied to vaccines or gases or something in the military. I couldn't believe they actually made law. Anyway, it was of the Lord that he made it by one month! There is also a society that pays for your MRI's if your co-pays are too much.
http://www.msaa.com/
There is ALOT of support out there!

What is your other questions?

[LindaLee]

I have MS. Many options out there as far as treatments. MS affects each person differently and treatment is based on symptoms and type of MS one has. The sooner you start on treatment the better off you are, however, be sure you find one that is right for you. I was on Avonex for 2 years, and had to eventually go on Copaxone. Avonex made my depression symptoms worse.

Remember YOU take control of the disorder, NOT the other way around. It is not a death sentence! It is just a detour in lifes highway....

[Miriam33]

If you have a bad flare and your disease is active...you get infusions of high dose steroids and other drugs that actually help a whole bunch!

[graceforme]

I will be lifting you up in prayer. If you use any artificial sweetener, such as NutraSweet, or Splenda, get rid of them now. Many people have been diagnosed with various disorders such as MS, lupus, etc. What they actually had was a severe reaction to NutraSweet. I was one of them, diagnosed with systemic lupus a few years ago. I was a heavy user of NutraSweet (phenylenalene). Someone warned me, and I completely stopped using it. My symptoms went away and I have been in great health for the past 3 years. I'm not saying this is your problem, but it sure can't hurt to take this POISON out of your life anyway. I think all the artificial stuff aggravates any symptoms you may have, regardless of the cause. Do some research and you'll find that what I'm saying is true.

God Bless, and many prayers are going up for you.

[tom_roberts]

I pray its just a anomaly

my sister has MS

I will pray for you:hug:pray

[lbeels]

Unfortunately there is a divide between conventional and unconventional therapies. By unconventional I'm not talking weird new age stuff but nutritional therapies that have helped many people. I had breast cancer 5 years ago and I had my conventional doctors and also a Naturopath to help in the area of nutrition. Even though my oncologist said nutrition was important, he didn't have any kind of support system to help in this area. It's so sad that they don't work together. I believe this really helped me although I can't pinpoint anything specific.

There could be a strong correlation between gluten intolerance and neurological disorders. My husband has Grave's disease, a thyroid disorder. Our naturopath strongly recommended him to go on a gluten free diet. There is a strong connection between gluten intolerance and thyroid disorders. I've read much about Graves disease but it wasn't until I did a search on the combination of Graves disease and gluten intolerance together that I came up with any information. Now, has any of his conventional doctors mentioned a word about his diet? Nada. Nothing. And on top of that the test results that our Naturopath did, not the conventional doctors, showed that he had the marker for Celiac Disease which is caused by gluten in the diet. Our naturopath said that even if he didn't have the marker she would recommend that he go on a gluten free diet. What she has found is that people of Northern European descent have a difficult time digesting gluten. I have hypothroidism and both my husband and I have just started the gluten free quest.

Also, if any one knows of Dr. Joseph Mercola, he has a practice, I believe in Ohio, and has claimed that he has cured several hundred people with MS using diet and lifestyle changes. He says that as long as they are not wheelbound yet there is hope for them. Interestingly he doesn't believe you should eat grains. And that would mean a gluten free diet. He is not a Christian. I get his email newsletter and some of the stuff is clearly not from a christian perspective and I just ignore it, but there are some very practical nutritional advice that I have learned alot from. His website gets more hits on a monthly basis that the American Medical Associations. You might want to check it out. mercola.com

This can be really hard changing eating habits and I confess I'm always struggling to eat well. You don't realize how many foods have wheat in them.

Hope this helps